Speakers bio

Koen Pepermans

speaker 2

Koen Pepermans received his master degree in political and social sciences (1994) from the University of Antwerp. He is the Faculty Director of the Faculty of Social Sciences and also the Data Protection Officer at the University of Antwerp. Before his current position he was a teaching and research assistant in the domain of methodology at the same faculty for the master years. As part of this function he taught multivariate statistics, coordinated student research projects in a multitude of topics and was promotor for students thesis’s. During this time he focused mainly on mental health issues and the Minimal Psychiatric Data-system next to other projects related to social aspects of environment and use of space. As part of this function he was a member of the steering group for the Health Survey at the end of the ‘90s. He has provided survey, model and IT expertise to numerous projects both as part of his job at the university and for other universities and organisations through his company KPsoft

Hanne Elsen

speaker 2

Hanne Elsen graduated legal practice in Diepenbeek, Master in Laws in Antwerp and Master of Laws in Notarial Law in Ghent. In 2016 she started her professional career as a business lawyer at Hasselt University, focusing on the legal aspects of academic research. While doing so, she developed a particular interest and expertise in ethics, integrity and privacy. She therefore continued her career at Ghent University, where she is currently appointed as Data Protection Officer. She has also been assigned as an independent Ethics Expert to the European Commission and is an avid member of several working groups concerning privacy and ethics, such as the Flemish Interuniversity Council (VLIR) on GDPR.

Laurens Vangeel & Ester Heymans

speaker 2

Laurens Vangeel is an interdepartmental staff member working on ethics and privacy in research. His tasks include supporting two of KU Leuven’s ethical committees, the Social and Societal Ethics Committee (SMEC) and the Education-Support Committee (OBC). In collaboration with the university’s legal department, his responsibilities include the privacy/GDPR check of new research projects dealing with personal data. As a link between the different responsible departments and committees, Laurens aims to aid in the development of clear and consistent policy and guidelines for all research among human participants conducted at KU Leuven. Formerly, Laurens gained a PhD in the social sciences at KU Leuven’s School for Mass Communication Research. In his research, he investigated the long-term effects of adolescents’ exposure to sexual media content on the development of their sexual cognitions and behavior in later life.

speaker 2

Ester Heymans holds a Master’s degree in Clinical Psychology (KU Leuven, 2018). She is an interdepartmental staff member working on ethics and privacy in research. She supports the Education-Support Committee (OBC), a part of the Ethics Committee Research UZ/KU Leuven that guides the ethical review procedure for master dissertations within the Biomedical Sciences Group. In collaboration with the university’s legal department, she also is responsible for the privacy/GDPR check of new research projects collecting personal data. As a link between different departments and committees, Ester aims to aid in the development of clear and consistent policy and guidelines for all research among human participants conducted by researchers and students at KU Leuven.

Dipak Kalra

speaker 2

Professor Dipak Kalra, PhD, FRCGP, FBCS, plays a leading international role in research and development of Electronic Health Records, including the reuse of EHRs for research. Dipak was a former London general practitioner and until recently the Professor of Health Informatics at University College London. He is a Visiting Professor at the University of Gent. Dipak has over the past 25 years led the development of ISO standards on EHR interoperability, personal health records, EHR requirements and data protection, and he leads multiple EU Horizon 2020 and IMI projects in these areas. His current projects include the generation of real-world evidence in pregnancy, the governance of patient-centric clinical trials, the readiness of hospitals for value-based care, and advising on success factors for the European Health Data Space. Dipak is President of The European Institute for Innovation through Health Data (www.i-hd.eu). This institute, which he founded in 2016, promotes the learning health ecosystem by developing strategies and enabling solutions that can improve healthcare and accelerate research through more trustworthy learning from health data. It is a multi-stakeholder not for profit body that supports healthcare and research organisations, and patients, to capture and reuse better quality health data. It promotes the adoption of interoperability standards, data quality assessment and improvement, good practices in privacy protection and focusing healthcare on outcomes and value.

Régine Kiasuwa Mbengi

speaker 2

Regine Kiasuwa Mbengi graduated in 2008 in the Humanities and Political Sciences, followed her training at the School of Public Health of the Free University of Brussels (ULB) with a Master’s degree in Health Systems and Management to then pursue a PhD in Public Health of this same university. She did her thesis work at the Sciensano Cancer Center on European joint action projects on the fight against cancer. It has thus linked various databases of the Belgian system in order to follow the evolution of the socio-economic position of Belgian workers who had cancer. Two literature reviews and three cohort studies yielded unique results that provide insights into the problem, quantify the phenomenon, and suggest ways for the government to improve the system. Régine Kiasuwa Mbengi is in charge at the Cancer Center of subjects related to the professional reintegration of cancer patients-patients and continues her work in this way.

Bart Vannieuwenhuyse

speaker 2

Bart is responsible for Data Science at the BeNeLux campus. During his career, he took on various leadership roles within Janssen R&D, IT and Commercial, at both local and international level. Bart was the coordinator of the EMIF project (European Medical Information Framework), an IMI (Innovative Medicine Initiative) funded project. He was one of the first advocates for re-using patient level data in the late 80s. He led the first innovation projects in Real World Data (RWD) and has been instrumental in developing the hospital network for the InSite Champion program, a follow-on project of the IMI EHR4CR project. Bart was one of the pioneers that started “Healthy Solutions” a J&J daughter company that focused on developing integrated services in the healthcare field. Between 1999 and 2003, he was in the core team that developed the initial Customer Relationship Management (CRM) approach for Janssen EMEA. Bart holds a Master’s degree in Biology from the University of Ghent (BE) and a Master of Business Administration degree from the Erasmus University in Rotterdam (NL).

Jessica Schroers

speaker 2

Jessica Schroers is a legal researcher and PhD student at the Centre for IT & IP Law (CiTiP) of KU Leuven. She has worked on various national and European research projects (FP7 and H2020). Her research focuses on data protection law and the legal issues related to electronic signatures and identity management.

Jean-Claude Burgelman

speaker 2

Jean-Claude Burgelman is professor of Open Science Policies and Practices at the Free University of Brussels; Faculty of Social Science and Solvay Business School. He retired on 1-3-2020 from the European Commission as Open Access Envoy and head of unit Open Science at DG RTD. He and his team developed, since 2014, the EC’s polices on open science, the science cloud, open data and access.
He joined the European Commission in 1999 as a Visiting Scientist in the Joint Research Centre (the Institute of Prospective Technological Studies – IPTS), where he became Head of the Information Society Unit. In January 2008, he moved to the Bureau of European Policy Advisers (attached to the president of the EC) as adviser for innovation policy. Since 1-10-2008, he joined DG RTD, as advisor and then Head of Unit in charge of top level advisory boards like the European Research and Innovation Area Board, the Innovation for Growth Group and the European Forum for Forward Looking Activities.
Till 2000 he was full professor of communication technology policy at the Free University of Brussels, as well as director of its Centre for Studies on Media, Information and Telecommunication and was involved in science and technology assessment. He has been visiting professor at the University of Antwerp, the European College of Brughes and the University of South Africa and sits on several academic journals. He chaired the World Economic Forum’s Global Agenda Council on Innovation and was a member of its Science Advisory Committee.
He recently joined the Board of Directors of DONA and became the editor in chief of Frontiers Policy Lab.